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Support Groups: Conditions and Diseases: Facial Differences: Craniosynostosis
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See also:
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- Cranio Kids - Group started by a mother and father looking for information on craniosynostosis. Offers fun, friends and craniosynostosis support. Includes a forum and blog.
- Cranio Surgery Support - Offers information, help, and support for parents of children with craniosynostosis. Includes a photo diary of the events following Sydney's surgery in 2003.
- The Craniofacial Group - Paris, France - Craniofacial Group; Management of anomalies of skull and face : craniosynostosis, facial clefts, hypertelorism, tumors and trauma.
- Craniosynostosis and Plagiocephaly Support - Site set up by two Manitoba women whose children were diagnosed and treated for craniosynostosis. Includes information on the conditions, therapies, FAQ, surgery stories and offers somebody to talk to.
- Jorge Posada Foundation: Craniosynostosis - The foundation aims to raise awareness of this congenital defect and provides families and affected children with emotional support and financial assistance.
- Parents of Children with Craniosynostosis (PCC) - Offers information and support about craniosynostosis. For families in Eastern Idaho and parts of Utah.
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